Congenital heart disease is survivable, manageable, yet in the routine years between infancy and adulthood, sometimes forgettable. The Adult Congenital Heart Association is a resource, advocate and knowledge base for everyone affected. Congenital heart disease happens when someone is born with defects in parts of their heart or in the blood vessels around their heart. Even though a baby is born with congenital heart disease, this disease may not be diagnosed until later in life. Adult congenital heart disease is common. About one in every adults has congenital heart disease.
Congenital heart defects may produce symptoms at birth, during childhood and sometimes not until adulthood. , adults in the United States have grown into adulthood with congenital heart disease. This number increases by about 20, each year.